The inheritance : a family on the front lines of the battle against Alzheimer's disease

by Kapsambelis, Niki,

Format: Print Book 2017
Availability: Available at 15 Libraries 15 of 15 copies
Available (15)
Location Collection Call #
Baldwin Borough Library Your Best Self 616.8 KAP
Location  Baldwin Borough Library
Collection  Your Best Self
Call Number  616.8 KAP
Bethel Park Public Library Biography 92 KAPSAMBELIS Family
Location  Bethel Park Public Library
Collection  Biography
Call Number  92 KAPSAMBELIS Family
Brentwood Library Nonfiction 616.83 Kapsambel
Location  Brentwood Library
Collection  Nonfiction
Call Number  616.83 Kapsambel
Bridgeville Public Library Your Best Self 616.8 KAP
Location  Bridgeville Public Library
Collection  Your Best Self
Call Number  616.8 KAP
C.C. Mellor Memorial Library Non Fiction 616.831 Kap
Location  C.C. Mellor Memorial Library
Collection  Non Fiction
Call Number  616.831 Kap
CLP - East Liberty Non-Fiction Collection RC523.K37 2017
Location  CLP - East Liberty
Collection  Non-Fiction Collection
Call Number  RC523.K37 2017
CLP - Main Library Second Floor - Non-fiction RC523.K37 2017
Location  CLP - Main Library
Collection  Second Floor - Non-fiction
Call Number  RC523.K37 2017
Community Library of Allegheny Valley - Harrison Non Fiction LP 616.8311 KAPSAMBELIS
Location  Community Library of Allegheny Valley - Harrison
Collection  Non Fiction
Call Number  LP 616.8311 KAPSAMBELIS
Cooper-Siegel Community Library Western Pennsylvania Collection WPA 616.8 KAP
Location  Cooper-Siegel Community Library
Collection  Western Pennsylvania Collection
Call Number  WPA 616.8 KAP
Mt. Lebanon Public Library Non-Fiction 616.831 Kap
Location  Mt. Lebanon Public Library
Collection  Non-Fiction
Call Number  616.831 Kap
Northland Public Library Nonfiction 616.8311 K14
Location  Northland Public Library
Collection  Nonfiction
Call Number  616.8311 K14
Oakmont Carnegie Library Non-Fiction 616.83 KA
Location  Oakmont Carnegie Library
Collection  Non-Fiction
Call Number  616.83 KA
Pleasant Hills Public Library Nonfiction 616.831 K17
Location  Pleasant Hills Public Library
Collection  Nonfiction
Call Number  616.831 K17
Plum Community Library Adult Non-Fiction 616.83 KAP
Location  Plum Community Library
Collection  Adult Non-Fiction
Call Number  616.83 KAP
Shaler North Hills Library Non-Fiction 616.831 K
Location  Shaler North Hills Library
Collection  Non-Fiction
Call Number  616.831 K
An inspiring race against time: The courageous, hopeful story of the one family who may hold the key to finding a cure for Alzheimer's disease.

Every sixty-nine seconds, someone is diagnosed with Alzheimer's disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can.

The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer's, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer's research and offers the brightest hope for future treatments--and possibly a cure.

Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer's through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. Their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this incredible narrative redefines courage in the face of one of the most pervasive and mysterious pandemics of our time.
Published Reviews
Booklist Review: "The DeMoes, the genetically unblessed stars of this journalistic look at Alzheimer's, know that they have a 50-50 chance of carrying a genetic mutation that causes early-onset dementia in everyone who inherits it. Should they get tested, or stay in the dark? Is ignorance bliss? And will they fare better or worse than the statistical odds? Kapsambelis, an empathetic reporter and storyteller, obviously cares deeply for the DeMoes. She met them back in 2009, when she was assigned to write a short article about a North Dakota family involved in Alzheimer's research at the University of Pittsburgh. She immediately decided they deserved a book, and, indeed, they do. Kapsambelis both zooms in on the DeMoes and zooms out to give the big picture of this heartbreaking disease, which can turn a gentle giant into a violent one and can shrink a 3-pound brain to 2.3 pounds. She also clearly explains the controversy over whether amyloid plaques or tau tangles drive Alzheimer's. With its ethical quandaries and likeable characters, this absorbing story will be of interest to medically curious readers.--Springen, Karen Copyright 2017 Booklist"
From Booklist, Copyright (c) American Library Association. Used with permission.
Additional Information
Subjects Kapsambelis, Niki.
Kapsambelis, Niki -- Family.
Alzheimer's disease -- Patients -- United States -- Biography.
Alzheimer's disease -- Patients -- Family relationships -- United States -- Case studies.
Alzheimer's disease -- Patients -- Rehabilitation -- Popular works.
Publisher New York :2017
Edition First Simon & Schuster hardcover edition.
Language English
Description xviii, 344 pages : illustrations, genealogical tables ; 24 cm
Bibliography Notes Includes bibliographical references (pages 301-333) and index.
ISBN 9781451697223
Other Classic View